“Children with diagnosed special needs face unique challenges. Because most have brothers and sister, their siblings face unique challenges as well. Even in the most capable of families, the children without disabilities may end up feeling shortchanged.
Yet, siblings of children with disabilities have a unique perspective as they grow despite the challenges they may face. Many know how to occupy themselves independently and be more patient. They may be more empathetic towards all people because they share the joy in the small accomplishments and the sadness of the setbacks of the siblings. Siblings of children with disabilities can be the strongest and most compassionate cheerleaders, advocates and friends.” ~ Community Kids (Spring 2015)
Normal sibling rivalry combined with additional medical attention can be overwhelming for a child. Yet, I am always amazed and inspired at the siblings of our Microtia patients and how supportive they are in general and during Microtia ear reconstruction surgery time.
Here are some Helpful Hints from our Microtia parents for our Special Siblings:
“Recognize and praise all of your children for their unique qualities and talents. The are all special.”
“Spend special time with the sibling, before/during/after surgery. It can be just 5 minutes, but make it valuable. It is not the quantity but the quality of time.”
“Have the sibling go to Grandpa & Grandma’s so they have their own special time too.”
“Reassure the sibling that their brother/sister will be ok. They may feel scared for their sibling but not be able to openly express any fears.”
“Encourage the child with Microtia to do as much for himself as possible. Putting batteries in their BAHA, etc.”
“Treat all of your children equally. Sometimes I find myself feeling sorry for my Microtia child and that doesn’t help anyone.”
“Have them watch the surgery videos so they know what to expect. I thought my non-Microtia child would find the ear cup scary-looking. But, he thought it was cool and wanted one too. You just never know!”
“Be mindful of gifts and attention to the child having surgery – from parents and from others!”
“Provide the sibling an easy, Go-To sentence for random questions when asked about their brother/sister’s ears or hearing device. This will allow them to respond appropriately and without hesitation. For example: ‘My sister was born without ears. Her hearing aid helps her hear. Want to play?”
Do you have any Helpful Hints? Please share them with us at info@lewinmd.com